Organising diagnosis

There is a lot of shame and embarrassment associated with dementia

1 in 3 over 80 will be diagnosed with dementia.

Mum refused to be diagnosed would not go to the Doctor. Had to see my GP on my own and ask her friends to help me in encouraging her to be diagnosed. We had to encourage Mum that medication will help her feel better and that we want her to feel her best.

Diagnosis

Everyone who is diagnosed with dementia, is affected differently. There are over 100 types of dementia.

For over 65 years of age, it usually takes about 3 years to be diagnosed. For those under 65 years of age it can take as long as 7 years.

Mum was lucky, it took about 6 weeks.

My mum was diagnosed January 2013, I was working full time.

It is far better to be diagnosed as early as possible.

Their journey is unique - Mum developed a sense of humour

They do a mini mental test of 30 questions with their GP to see what can they remember. The GP provides a referral to a Geriatrician, which may take 3 months to make an appointment where they will undertake various tests, including CT scans to assess their brains. Mum was prescribed a dementia medication Aricept which only slows down the progress of the dementia.

As soon as they are diagnosed, ring Dementia Australia for their assistance 1800 699 799

In the beginning we all have a very short fuse and are so angry because of all the stupid things they do and the endless repetitive questions. Drives every carer crazy and we all feel like such horrible people when we get angry and upset with them. Luckily as they have no short term memory, they forget, but we do not and we all feel so guilty and ashamed.

I was forced to learn endless patience with much practice as it was not her fault she could not remember the answer.

Sadly with a diagnosis of dementia unlike cancer where most rush to help, most disappear and you are very alone. There is huge stigma and ignorance with dementia diagnosis, very tragic and we must make this change

Did you know only 30% of dementia sufferers are in aged care facilities and the remaining 70% are cared for at home by loved ones.